What *not* to say....
A friend or acquaintance tells you that their new baby has down syndrome and you are stunned and at a lost for words. Your first instinct will be to offer your sympathy and feel sorry for the new parents, but please don't!
I would encourage you to say the very same things that all parents want to hear- CONGRATULATIONS! Boy or girl? How much did he weigh? Does he look more like mom or dad? Is he healthy? If not, then you could safely say, " I am sorry to hear that, how can I help you?"
Then be willing to volunteer to bring a meal to two, offer to take other children for day or even an afternoon. If the other siblings are older, offer to take them with your family on outings.
This is not to say that you should ignore the DS or the fact that the mother is most likely struggling with all kinds of mixed emotions at this point! Be ready to listen with an open mind. If you are a close friend, be ready to offer support and also hope. The internet is a wonderful place to find all kinds of stories about families who want you to know that this child is a huge blessing.
Here are some things parents on the DSIE list serv have heard from others over the years:
"I know people don't mean it wrong or hurtful when they say it, but... I am just so tired of hearing, "God knew what he was doing when he gave you Hunter, because I just couldn't handle it". Like he SUCH a burden and we are just so good at carrying that burden... Sometimes when I've had a trying day and feel mean, LOL, I just look at them and don't say a word."
Patty
Kathy
"When Sam was a few weeks old I had him out shopping when a "friend " stopped me and asked to see the baby ( he was right there in the buggy in front of me playing with his cookie monster toy !!! ) . She looked at him and said in total surprise ??"oh does play with toys like a real baby ?? " I mumbled something and ran away but would have loved to have said " yes but only when I put his batteries in " and while I am at it Can I help you find someone to tighten those loose screws of yours??"
Catherine
"My least favorite thing was from my husband's own sister: "I really admire you for loving her" "
Kathy
"Here is one that peeves me......
"Well, they are always so loving and happy."
They look incredulous when I laugh at them and ask them wherever could
they have ever gotten that. Then I take the opportunity to remind
them that my daughter is a KIDS and just like ALL KIDS she is happy,
sad, cranky, loving, goofy, snotty...... ..
GRRRRRRRRR! LOL"
Cindy
Some other points parents brought up : don't ask 'How retarded is he ?', don't favor the typical sibs or exclude the child with DS. Please don't send parents a sympathy card after the birth- this happened to us.
Carol
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people who read us
blogs to read
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My PSW3 years ago
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What day is it, even?3 years ago
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Call me a Troublemaker7 years ago
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Share the Love8 years ago
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Rememberance.....10 years ago
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How to Read a Poem10 years ago
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Friday Friends Hoffman Spring Dance!12 years ago
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